About Nephrotic SyndromeThis case study is written after consulting with 2 Nephrologists- Lourdes Hospital, Aster Medicity, 1 Urologists - Rajagiri Hospital, 1 Homeopathic and an Ayurveda doctor. Nephrotic Syndrome or the Minimal Change Disease or IgA Nephropathy or Focal segmental glomerulosclerosis [FSGS] are often seen in Children. It can be present in Adults without any particular cause.
If you have any such disease or symptoms, the first thing is to do tests and get a diagnosis. Then start reading about the disease and get as much awareness as possible.
Hematuria - Presence of blood in Urine. This is microscopic. A test is needed to identify this.
Edema - Puffy Face and swelling usually in the legs, feet, or ankles are quite common in this disease.
Decreased urine output, although occasionally urine output remains normal.
Tests You Should Do
MedicinesThe current medicines in English medicines are Diuretic, ACEI, ARBs, steroids and tablets to reduce blood pressure and the new invention is the infusions of Rituxan/Rituximab. You should know that there is no cure for nephrotic syndrome in English Medicine. They will try to manage the symptoms and will not go to the cause of the problem. If your disease gets worse, you can always go back to English Medicine.
Cure for Nephrotic Syndrome: Case Study
21 February 2019 result - Albumin has reduced to 1800.9 mg/24 hr urine.
15 March 2019 result - Albumin reduced to 1113 mg.
On top that, I reduced taking Tea, quit my job and take rest now at home, drink one glass of water with little tumeric powder in it etc. You should try to not to get sick or get affected with any disease. Stop smoking, stop drinking and drink enough water.
Do keep your options open. Try Ayurveda for 4 months and check the result periodically. That's all I can say.
Support GroupsFacebook Support Groups such as Nephrotic Syndrome, Nephrotic Syndrome Parent Support, can help you to discuss the issues and get advice and awareness. NephCure Kidney International runs a Facebook page to give awareness to people on this.
I was inspired to write this post after seeing the Matthew and Nephrotic Syndrome page. Matthew was diagnosed with Nephrotic Syndrome in 2012 and he had a hard journey. He writes all the tests, problems he had to undergo. He had Rituximab and have been In Remission for around 8 months. Nephrotic syndrome/Minimal Change Disease is another page where a mom writes about her child who has this syndrome.
Check out NephCure.org or email directly at khelm[at]nephcure.org and he will send you some resources. Depending on the biopsy results there may be an alternative to prednisone. If you have FSGS be sure to look into http://www.firstx-trial.com this is an alternative first line treatment to steroids. It has been showing promise! You can find more info about treatment sites close to you at www.kidneyhealthgateway.com I know I just threw a lot your way, so please feel free to reach out.
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